Day 1 of chemo Jacob had said “ chemo is easy!” How I wished and hoped and prayed it would stay easy but that was short lived. The last 3 days have been hard for Jacob. Nausea, no energy, cannot eat or drink. His big contagious smile has faded and he has gone from saying chemo is easy to saying “there was nothing good about today, Mom”. It is so very tough to watch. My heart is hurting for him and each day that passes the ache seems to grow as I watch him get more sick and weak.
Around noon today the doctor took Jacob off IV fluids and nausea medication with the hopes we could move to Ronald Macdonald House for the night, come back tomorrow morning for a bloodwork and checkup and then head home if all looked okay. A few hours later it was obvious Jacob was in no condition to leave and they hooked him back up to fluids and meds. He is receiving 4 anti nausea meds now, and he still cannot eat or drink. We will try again tomorrow and go from there. The Cisplatin he is on for chemo is notorious for causing this and often a delayed nausea reaction. So, another night here, but it’s where we need to be!
Jacob has received many Best Wishes letters delivered by volunteers. Thank you to everyone who took a few minutes to send him an email. It brightens our room and occasionally even gets a smile from Jacob – or at least one corner of his mouth moves a bit. But even that is good to see right now.
We do have a pretty amazing view from our 8th floor room and have been treated to a few beautiful sunsets. The small things become bigger things right now – and they are needed to help us cope through the difficult days. Thank you for the continued prayers for Jacob. 💙🎗