Another early morning heading to Children’s Hospital today to find out the results of last weeks bone biopsy and PET scan. Only 18 days have gone by since the initial X-ray indicating Jacob may have an aggressive form of bone cancer. The wait has been excruciatingly long, but we are thankful for some of the normal days in between and that Jacob got to attend his grade 7 grad! It was a beautiful and an emotional evening for us.
Our day at Children’s started out with an IV line to hydrate Jacob before the kidney testing started. During this time we had a visit from the orthopedic surgeon to check on Jacob’s biopsy incision, and the physiotherapist to give Jacob his new set of crutches and a lesson on how to use them properly.
We headed down to nuclear medicine after this so they could inject radioactive dye in before his scans and bloodwork which would happen throughout the day to measure his kidney function.
Then it was time for the big meeting of the day. The oncologist, nurse, and social worker met with us to discuss the results. The suspicions were correct and Jacob does have osteosarcoma in his femur. The tumor is large, and they see what is called a “skip lesion” which is another section of cancer aboove the original tumor. The PET scan shows no sign of spread anywhere else, which is very good news. They do not consider the second tumor to be a metastasis because it is contained in the same bone. Below is a picture from the PET scan showing the tumor in his femur. It’s not pretty and was very difficult for us to see.
On a humorous note, Jacob has named his tumor. Delores Umbridge. A villain from Harry Potter. Our mission is to kill Delores as quickly and effectively as possible and in whatever way is needed. We know there will be some drastic measures and changes involved, but we are all willing to fight this monster with everything we have.
Tomorrow morning, early again 😐 I will bring Jacob in for surgery to put his chemo port into his chest. We will be admitted to the oncology ward after that and chemo therapy will begin on Saturday morning for several days. Jacob will be in the hospital for 5-7 days for he first round of chemo. There will be 10 weeks of chemo before the surgery to remove the tumor.
This news is not shocking for us, as we knew deep down that this is what we were going to be dealing with. That does not make it any easier to digest, but we know that with the support of family, friends, our church community, and God…that we are not alone. We continue to cling to God and his promises, knowing he loves Jacob very much.
The day ended with some hearing tests and an echocardiogram to get baseline testing of his hearing and heart function. 12 hours later and we are back at home, ready to begin this new chapter and to get our son healthy again.
We appreciate your prayers, and all the support we are being shown through this difficult journey we are on.