Basketball, pizza party, and hair loss

So much has happened since Jacob’s graduation 18 days ago.  Official diagnosis. Port surgery. Chemo began. The horrible side effects hit full on and furiously. Jacob’s first ambulance ride for fever. In the last 17 days, 15 have been in the hospital and 2 have been at home. Graduation feels like a lifetime ago now.

Today was a mostly good day even though we didn’t get the news we wanted. Jacob’s counts have dropped and we won’t be able to leave now until they see them rising.  There is no sign of infection in his blood cultures but because his neutrophils are at 0.1, he’s at high risk of picking up infection and getting more fevers which would only send us back. His hemoglobin is at 8, so he is exhausted. The doctor thinks that blood transfusions next week are likely.

We did book 3 nights in Vancouver for a “holiday” but with Jacob being so tired and still not knowing when we will be dishcharged, I can’t see it happening. Jacob can handle about half an hour out of bed before he gets exhausted and pale and needs to lay down again.  His hair loss has really started now and chunks of hair are coming out at a time now.  As I write this he his busy pulling it out try to give himself a receding hair line. 😂 Noah and Kaleb each took a turn pulling some out as well.

Ray and the three boys visited us for the afternoon and evening.  We played basketball on the patio and ordered pizza for dinner, then went back to the room and watched a movie together. It is so good to be together.  Evan is having a hard time with this all, missing Jacob and myself badly. It hurts so much to see. It’s tough seeing everyone leaving on their summer holidays knowing our kids will have a very different summer. We look forward to summer from the day school begins in September.  We thrive in summer as a family.  Camping. Canoeing. Hiking. Lake days. Lake evenings. River walks. Bike rides. Campfires.  Late nights laying on the trampoline looking at the stars. Working as a family in the hop fields. Lazy mornings.  It is definitely the best time of our year.  I hope that somewhere in the next couple months we can give the kids some fun summer memories despite this all.

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15F7D32E-905D-4EF3-9814-256E49BA4B80We discovered a toddler basketball net and a ball so when Jacob is rested we head to the patio to play. It’s been a lot of fun and even though it’s a little kid net, it’s been so good for Jacob to be able to shoot some hoops again. Only a few months ago he was winning All Star Awards at basketball tournaments.  He was so excited to get to high school and try out for the basketball team. It’s so hard to see him like this now. He needs help with everything, from getting out of bed to going to the bathroom, showering, getting food, getting out onto the patio etc.  Jacob was our biggest helper. On the farm. In the house. With the other kids. So athletic. So active. It’s still so surreal to me how much that has all changed. There has been so much to process in such a short time period. Jacob still has never complained once. Not one moment of feeling sorry for himself. He really does amaze me. He is a gift from God in our lives and we are going to fight this so hard to win.

A4A7DC2F-A5C0-4FDF-BB01-364869F05B64Psalm 34:17-19

When the righteous cry for help, the Lord hears and delivers them out of all their troubles.
The Lord is near to the brokenhearted
    and saves the crushed in spirit.

Many are the afflictions of the righteous,
    but the Lord delivers him out of them all.

Thank you again to everyone who is praying and helping in various ways. Love to each one of you. 💙

7 thoughts on “Basketball, pizza party, and hair loss”

  1. Tracy, I understand the disappointment about not having the summer you had hoped to enjoy and to give to your children. But it sounds like you’ve given them so much in their short lives, and even this summer, you’re giving them so much to remember. It’s easy to focus on the things you won’t be able to give the ones you love. You will be making memories this summer of a different sort. They get to see how their parents live out the worst nightmare parents can have, in faith and trust. They’ll be able to get to know their heavenly Father in a totally different way, through you. I hope there will be opportunities for fun and enjoyment . But it sounds like you take opportunities to make good days and moments in whatever small ways you can.

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    1. You may not see it right now but you are making so many great memories even as you go through this trial. Family love, faith, courage and laughter between the sorrow and tears. Learning to enjoy smaller moments. Teaching your children (and everyone you meet along the way) to lean hard on the promises of the gospel.
      Always in our prayers. Always on our minds & hearts. ❤

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  2. Thank you sharing Jacob’s journey with us, for taking time when you must be physically, mentally and emotionally exhausted. It allows us to glimpse into your reality and pray all the more for Gods healing, caring, all-sufficient hand to work in Jacob’s life – and yours as his parents. I’ve never met you (friend of Lynda’s), but this family of God is huge and prayer is a powerful thing when praying to our powerful God! Keeping you all in my prayers.

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  3. Praying. I do not know your family either but I do know pain. Of a different sort. I am in awe of what you are going through and will continue to pray as I see your updates.

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  4. I want to add that there is nothing wrong in grieving what you have lost. I certainly do & have done over the years……
    love you all, Mom

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  5. Hi Jacob! i really like your shirt about bacon! keeping you in my prayers! Also, make sure you don’t throw the basketball over the side! Thanks for keeping us updated.
    -Sam

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